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Esophagitis and brains April 12, 2018

Posted by Judy in Musings.
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I realized after several people poked me about the brain MRI that I never shared the results!  I guess that got lost in the rollercoaster that has been the past month.  The good news is that my brain is clear, no problems.  Huzzah!  I do have some spots in the bone marrow of my skull, but that is consistent with bony disease in my body.  I honestly don’t know how much bony disease there is at this point, but no one seems to be worried about that, so I’ll choose to not worry as well.  I’ll just focus on the fact that my brain is clear, for now.

My current issue is something called esophagitis.  I just finished 10 rounds of radiation to my spine in the t2-t4 region (which is where my compression fracture is) and the l2-l4 region (which is lower down where I was having pain).  When I signed the consent, the list of possible side effects was enormous.  The radiation oncologist is very thorough in explaining, which I appreciate.  But the long list means that I didn’t really internalize everything on the list.  I finished the spinal radiation on Thursday of last week.  Two days later, on Saturday night, I noticed that it hurt in the middle of my chest when I burped, or when I ate food.  I’d swallow a bite, and a second or two later, I would feel pain when the food got about 4 inches down my esophagus.  My dad had the thought that maybe it was a result of radiation, since the discomfort was exactly in the t2-t4 section that was radiated.  After talking to my oncologist on Monday morning, he seemed to think that was a likely cause, but wanted me to talk to the radiation folks.  Sure enough, when I mentioned the pain to them they said I likely had a mild case of esophagitis, which is an inflammation of the esophagus.  Fun!  So now I take a liquid an hour before I eat that coats my esophagus so that I can eat without pain.  The rad onc said the pain should clear up by the end of the week.  So far, I haven’t noticed the pain diminishing, so I’m feeling skeptical that it will clear up, but I’m trying to stay positive.  At least I’m not able to eat without pain with the help of the very expensive coating stuff.  As an aside, I’m SUPER glad that my dad was with me when talking to the rad onc, who was originally going to prescribe some other compound.  My dad asked what was in the compound, and we discovered, dun dun dun, lidocaine.  Yeah, can you imagine me drinking something with lidocaine in it?  My throat would close up immediately, I so allergic to it!  Phew, dodged that bullet!

Anyway, here’s a few more quick updates.

  • Pain meds are doing a decent job of keeping my brain tricked into thinking there isn’t pain.  I’m also hoping that the radiation I had to my pelvis will also help with the pain so that I don’t have to take as many pain killers.  I mean, I take the strong meds because I need them, but I’d definitely rather not be dependent on morphine, ya know?
  • I’m finishing up my 2nd cycle on Xeloda.  The main side effect is stomach pain and nausea.  I dry heave pretty much every day.  As awful as it sounds, it actually is really nice to be able to dry heave because then my nausea instantly disappears.  Hey, at least food isn’t coming up!  (Aren’t you glad I just shared that! lol)
    • After one more cycle, I’m going to have another PET scan to see if Xeloda is working.  I’m praying that it is doing it’s job as I REALLY don’t want to have to start up IV chemo again!

And, that’s a wrap!

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Comments»

1. Jessica - April 12, 2018

Praise You Lord for Judy! I always pray for you when I get your blog posts and I’m so thankful that the pain is being controlled and that you are more than just alive but THRIVING. I thank the Lord that your Dad is with you and I pray a special prayer of blessings over you, your husband, kids, family/friends this day. Let even the little things bring you JOY!


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